Connect with us

Politics

Danny Burgess, Adam Anderson take on genetic counselor shortage

Published

on


State Sen. Danny Burgess and state Rep. Adam Anderson have filed legislation that would address a shortage of genetic counselors and strengthen the state’s capacity for advanced medical care and genetic research.

The identical measures (SB 1376 and HB 1115) would establish the Genetic Counseling Education Enhancement Grant Program within Florida’s State University System to support the development of American Board of Genetic Counseling-accredited graduate-level genetic counseling programs, to eliminate Florida’s status as a genetic counseling desert.

With just 179 licensed genetic counselors in the state, patient demand is not being met. Genetic counselors guide families facing complex genetic diagnoses, and they serve as essential partners in research, innovation and precision medicine.

“It’s not easy to develop expertise in the genetic field, and right now Florida simply doesn’t have enough trained professionals to meet the need,” Anderson said. “Genetic counselors are on the front lines, helping families navigate life-altering diagnoses and supporting breakthroughs in medical research and innovation. Financial barriers, on top of years of intensive training, should not stand in the way of Floridians willing to step into this critical role. By investing in education today, Florida can help solve a national shortage and ensure families here aren’t left behind.”

The issue is personal for Anderson. His son, Andrew, passed away from Tay-Sachs disease, an ultra-rare fatal genetic disorder with only 16 cases annually nationwide. There are more than 7,000 known rare diseases that affect some 350 million people worldwide, according to Anderson’s office.

Since his son’s death, Anderson and his family have been active in advancing research in rare diseases through the Cure Tay Sachs Foundation and their AJ Anderson Foundation. Anderson previously worked with former House Speaker Chris Sprowls to create Tay Sachs Awareness Day in Florida on Aug. 10, Andrew’s birthday.

Anderson successfully ran a bill (HB 907) last year, which Gov. Ron DeSantis signed in June, establishing the Sunshine Genetics Act. The Act authorizes the expansion of pediatric rare disease research and positions Florida as a national leader. It also established the Sunshine Genetics Pilot Program with $3 million in initial funding, laying the foundation for a new $100 billion genomic medicine industry in the state.

In 2024, Anderson successfully ushered through a bill (SB 1582) that created a grant program to fund scientific and clinical research on rare diseases.

Burgess will champion the latest effort to tackle genetic disorders in the Senate, saying this legislation is needed to grow Florida’s health care workforce.

“As medicine becomes more advanced and personalized, the demand for highly trained genetic counselors will only increase,” he said. “This legislation is about preparing Florida for the future by expanding educational opportunities, strengthening our health care workforce, and ensuring families across the state have access to the expertise they need without having to leave Florida for care.”

Doctors are praising the effort, with Dr. Pradeep Bhide, the director of the Florida State University (FSU) Institute for Pediatric Rare Diseases, calling it “a vital step toward building (the) genetic counseling workforce Florida families desperately need.”

“We are delighted to see Rep. Anderson continuing his important work to make Florida a national leader in developing new education programs to help patients and families understand the complex challenges surrounding genetic disorders,” added Dr. Charles J. Lockwood, executive vice president at USF Health and dean of the USF Health Morsani College of Medicine. “As the USF College of Public Health is home to the only accredited genetic counseling graduate program in Florida, we have a deep understanding of the need to expand the genetic counseling workforce in Florida and know that these grants will help patients and families across the state.”

The University of South Florida (USF) is currently the only Florida institution with an active genetic counseling program. FSU has a program in the approval process.

The measure would address key barriers to program growth, including faculty shortages, student financial constraints and limited access to clinical training sites. It would establish grant funds to recruit and retain qualified faculty and provide financial assistance to students. Institutions could not use funds for general administrative costs, to construct new facilities, or for non-program-related activities.

Additionally, participating universities would be required to maintain detailed compliance records and submit annual reports on expenditures and outcomes.

The bill, as currently written, does not include cost estimates or grant amounts.

If approved, the program would take effect July 1.



Source link

Continue Reading

Politics

Nathaniel Lautier: A profile in courage — and bad decisions

Published

on


A sitting Congressman, a former Miss America, and a restraining order. At this point, only one mechanism remains to hold him accountable: the voters of his own district. The question is whether they will use it.

Rep. Cory Mills is a case study in how misconduct can persist in plain sight when the political and media environment is overwhelmed by chaos. His controversies are serious, numerous, and ongoing. Yet they have struggled to break through a news cycle saturated by Trump-era spectacle, real-time scandals, and selective outrage.

This is what falls through the cracks when everything is breaking news.

So why is no one paying attention?

The answer is not a lack of substance. It is a fundamental shift in how attention works in the modern media ecosystem. When there is a Watergate every day, none of them feels like Watergate anymore. Stories unfold live, social media sets the agenda minute by minute, and newsrooms are forced into constant triage. What once would have dominated front pages and cable panels for weeks is now lucky to survive a single editorial meeting.

Distance matters, too. As time passes without immediate consequences, sustaining public interest becomes harder. In the past, national media needed stories to fill airtime and column inches. Today, the news cycle generates itself endlessly. As a result, stories like Mills’ are quietly deprioritized, condensed, or shelved altogether.

That reality raises an uncomfortable political question: If a congressional seat is safely red, does Republican leadership care who occupies it? Based on the response — or lack thereof — to Mills’ conduct, the answer appears to be no.

On paper, Mills was once a strong candidate. A decorated military veteran with national security credentials, he entered the race for Florida’s 7th Congressional District ahead of the 2022 Midterms with a résumé Republicans typically celebrate. But since taking office, he has accumulated a pattern of controversies that raise serious questions about his judgment, personal conduct, and fitness for office.

Mills served in the U.S. Army from 1999 to 2003 and was deployed to Iraq, earning a Bronze Star. After leaving the military, he worked as a defense contractor and later co-founded PACEM, an arms manufacturing company that claimed to support U.S. allies abroad. The company later faced regulatory and financial trouble, including actions by the Florida Department of Financial Services that led to the closure of two facilities.

Despite those issues, Mills was appointed by President Donald Trump in 2020 to the Defense Business Board, a Pentagon advisory group that President Joe Biden later dismantled. Mills announced his congressional run shortly afterward and won election in 2022 after redistricting transformed the district from blue to solidly red. He was re-elected in November 2024.

It is after that victory that Mills’ tenure began to unravel more publicly. Reports of domestic incidents involving multiple women — none of whom are his wife — began to surface. These include an alleged domestic disturbance involving Sarah Raviani and separate allegations by former Miss America Lindsey Langston, who accused Mills of misconduct, including revenge porn. Mills has repeatedly appeared in headlines for reasons unrelated to legislation or policy.

In August 2025, Langston filed for a restraining order against Mills, disclosing a recent romantic relationship. Mills remains legally married to Rana Al Saadi, though reports suggest the couple has been separated for several years.

Even before the domestic allegations escalated, Mills was under investigation by the House Ethics Committee over whether he improperly profited from defense contracts while serving in Congress. The investigation, announced in August 2024, carried into the 119th Congress. Efforts to censure him have stalled without reaching the House floor.

The situation escalated further on February 21, 2025, when Washington, D.C., police responded to a domestic disturbance call at Mills’ residence. An arrest warrant was prepared but never signed. Under ordinary circumstances, that decision alone would have triggered sustained scrutiny.

Instead, it barely registered.

Fifteen years ago, this record would likely have generated weeks of national attention. Today, it competes with a political environment defined by a nonstop crisis. Florida Democratic Party Chair Nikki Fried has argued that Mills is shielded by what she calls a corruption blanket created by Trump’s return to power. After the warrant went unsigned, Fried said in a February press release, “It’s obscene but not surprising to think that Cory Mills may get away with domestic assault because he’s one of the President’s loyal soldiers.”

Where this leaves Mills is politically precarious but institutionally safe, for now.

The ethics investigation remains unresolved. The Justice Department declined to act. Republican leadership has shown no appetite for intervention, and Trump has remained silent.

At this point, accountability rests in one place only. The voters. If Mills faces consequences, it will not be because of an Ethics Committee, a prosecutor, or party leadership.

It will be because the people of Florida’s 7th Congressional District decide that chaos is no excuse, distraction is not absolution, and silence is not innocence.

___

Nathaniel Lautier is a political journalist based in Florida. He is currently completing a Bachelor’s degree in Political Science at Flagler College in St. Augustine. As a veteran of the United States Air Force, Nathaniel previously served as an intelligence analyst before pursuing a career in journalism.

The post Nathaniel Lautier: A profile in courage — and bad decisions appeared first on Florida Politics – Campaigns & Elections. Lobbying & Government..



Source link

Continue Reading

Politics

Gov. DeSantis names his appointments and reappointments to FAMU Trustees panel

Published

on


All four names picked by DeSantis have steep backgrounds in public service.

The Florida A&M University (FAMU) Board of Trustees has two new members and two that are coming back for renewed terms.

Gov. Ron DeSantis appointed of Roderick Harris and Kenneth Johnson to the panel while also reappointing Natalie Figgers and Michael White to the FAMU panel. The moves still need final approval from the Florida Senate. The FAMU Board of Trustees sets policy for the school based in Tallahassee.

Harris is the Director of System Innovation at the Florida Department of Juvenile Justice and he’s also steeped in business. He’s the Senior Business Analyst and Project Manager for Five Points Technology Group, which specializes in behavioral Health data for the Northwest Florida Health Network. Harris has previous experience with FAMU where he was the Secretary of the school’s Social Work Community Advisory Council.

Jones joins the FAMU board with backing in experience as the CEO of HCA Florida Northwest Hospital in Broward County. He was also the previous President of AMITA Health St. Francis Hospital and had a stint as the CEO of Southeast Orthopedic Specialists.

Figgers if the Founder of her own law firm based in Fort Lauderdale. She’s also a community activist as she serves as Secretary and Treasurer of the Figgers Foundation Inc. and received the Most Ardent Community Advocate in 2022 from Florida Memorial University.

White is the Co-Founder and Chief Business Development Officer of Indelible Solutions, a personal and human services firm based in Tallahassee. White is also a member of the Florida Institute of Certified Public Accountants. His work and expertise earned him the honor of being a finalist for the Ernst & Yount Entrepreneur of the Year Award in 2023.

Members of the FAMU Board of Trustees work on the panel as volunteers as none of the members of the panel receive any compensation for their service.



Source link

Continue Reading

Politics

Florida GOP backs James Uthmeier for Attorney General

Published

on


Incumbent Attorney General James Uthmeier has nominal opposition in August’s Primary, but he has the official imprimatur of the state’s Republican Party well ahead of the first votes being cast.

“James Uthmeier represents the very best of our party and our movement,” said Republican Party of Florida Chairman Evan Power. “He earned the trust of Governor Ron DeSantis through his appointment as Attorney General and the endorsement of President Donald Trump by consistently delivering for Florida. This unanimous endorsement reflects the unity of our party and our shared confidence in James to continue leading and winning for Florida.”

Uthmeier was DeSantis’ Chief of Staff before being appointed to replace former AG Ashley Moody, who herself was appointed to replace current Secretary of State Marco Rubio in the United States Senate.

As evidenced by the unanimous vote to endorse him at Saturday’s meeting of the state party,  the Republican apparatus approves of what Uthmeier has done with his opportunity, lauding him for being “focused on fighting federal overreach, standing up for victims, protecting parental rights, and ensuring Florida remains the freest state in the nation.”

“The Republican Party of Florida is united and focused on winning,” Power added. “James Uthmeier has delivered for Florida, and we are proud to stand with him as he continues the important work of defending our state and our values.”

“Florida’s conservative grassroots leaders have helped us to become the deep red ‘Free State of Florida!’ It’s an honor to have your support and I will not let you down,” Uthmeier said on social media after receiving the endorsement.



Source link

Continue Reading

Trending

Copyright © Miami Select.